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Like any other patients in China, we want to live with dignity and no longer face the dilemma of either waiting for death or plunging into poverty, said Li Ying, a PAH patient from Shenyang in northeast China's Liaoning Province, in an interview with Xinhua.Unable to afford proper drugs for two years, Li's situation worsened until the Shenyang city government began a medical assistance program in 2012 to cover 70 percent of local patients' expenses for PAH drugs.For Li, the move, combined with drug donations by China Charity Federation, has reduced her spending for a monthly dose from 19,998 yuan to 1,200 yuan.FIGHTING FOR VISIBILITY, WAITING FOR HELPLi is a member of the Beijing-based I SEEK, China's first non-governmental organization established by PAH patients. 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PAH treatment is not included in the country's healthcare program, as existing governmental assistance is only experimental, and drug donations are impermanent.With a monthly income of 1,700 yuan, Li, a self-taught acupuncturist, has to care for her mother, who has been confined to a wheelchair by lower limb paralysis for years. Her father has not returned home since mother and daughter fell seriously ill, though he gives them 500 yuan a month.Li's worries are justified, doctors say.For a critical PAH patient, the specter of death always haunts. 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